To Make a Long Story Short Part 1

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I have a friend of a friend of a friend that usually says “to make  long story short” about fifteen minutes into the story (smile). My LSS goes like this. My first thyroid cancer diagnosis was in 2005. I went for a CT scan on my sinuses and since I am allergic to the contrast, I had to do a prep. Dr. L decided to scan my whole head and neck. This was a God-thing because that was how my first cancer was found. Mark and I were both self-employed at the time with pre-existing conditions so insurance was a nightmare. I was quietly living with Crohns Disease and we had what was called TNCare. Not alot of doctors were willing to take TNCare patients so I was limited who would see me. So, I landed with Dr F. My journey started with a very painful biopsy and then surgery to remove my thyroid. After surgery I had complications that resulted in me having Hypoparathyroidism (poof! I now have two chronic conditions). My parathyroids were damaged during surgery so the calcium and phospherus in my bones and blood could not regulate on their own. This resulted in several ER visits and much adjusting of medication. This is a rare condition I will live with for the rest of my life. The rest of my treatment seemed pretty standard. After having my thyroid removed I had no thyroid function so I suffered all those side effects experienced when you have no thyroid function. I was exhausted, weak, emotional, had dry skin, hair loss, was always cold and ached all over. And just when I thought I had enough I had to do what I fondly refer to as The Ridiculous Diet. The diet was to increase the effectiveness of my upcoming raidoactive iodine treatment. Prohibited foods: Dairy, Egg Yolks, Seafood or anything from the ocean, Processed or prepackaged foods, restaurant foods, baked goods, soy, chocolate, Red Dye #3,  beans, sea salt or iodionized salt. See why I called it ridiculous. When I recieved the RAI I had to be in isolation at the hospital for several nights. I remember telling Mark that we married for better or worse and I was pretty sure this was the worse. With surgery and treatment behind me I could finally start my thyroid replacement horomone and was certain things had to be getting better. However, my daily medication was a whole seperate ordeal. My calcuim levels were so bad I needed to take calcium three times a day. I couldn’t take calcuim or my thyroid replacement within two hours of each other or anything else. I also had my crohns medication that needed to be taken two times a day. This left me with six times a day that I needed to take meds at least two hours apart. If I messed up on my schedule I couldn’t take everything that day. If I missed calcium I had symptoms quickly. The other meds took a bit longer to feel a missed dose. This did this for the next ten years…

As I revist my LSS I wonder how in the world did I do this!? How do other people do this!? And I smile because I am blessed with a huge support system. I am loved. I have purpose. The God of the universe knows my name. And it is simply because of these things that I am able to continue.

10 thoughts on “To Make a Long Story Short Part 1

  1. Enjoying reading your thoughts on being still, looking homeless and on LLS! It’s good to have a review of your history. Now I won’t have as many questions when I see you! Ready for more thoughts and writings and ready to listen. Thankful you do have a strong support system of family, friends and faith.

    Liked by 1 person

  2. I did not know all the details. You have had a horrible time. So sorry , please keep us informed on how you’re getting through all of this. Please know that you are in our thoughts and prayers for you and Mark.

    Liked by 1 person

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